One Year of ‘Life with Endometriosis’
It's over a year since the launch of ‘Life with Endometriosis’. A good time to think about what has been achieved. I have hear the stories and feelings from 20 women with endometriosis. Twenty lives disrupted. Twenty careers impacted. Twenty families struggling with consequences of living with chronic illness. Every story makes me more determined to raise awareness of endometriosis.
Endometriosis affects women worldwide, so I’m showing my photos at talks and entering exhibitions worldwide.
Photos from ‘Life with Endometriosis’ have been show:
- Manchester, UK at ‘Endometrisis Information Day’
- The Louvre, Paris, France ‘SeeMe Exposure Award’ pg 21
- Halifax, Canada in ‘Our Bodies Our Blood’
- Manuka Arts Centre, Canberra, Australia in ‘PhotoActivism’
- Belconnen, Canberra, Australia at our 'One Year Celebration'
- on LinkedIn post ‘What Can Men Do?’
Repeating themes I have photographed include:
- illness disrupting commitments,
- attitudes of managers and colleagues to time taken off work,
- the hidden nature of this disease,
- difficulty and painful moving the body,
- internal organs stuck together,
- major surgery such as bowel resection,
- depression and self harm,
- fighting the disease,
- painful sex,
- help from friends,
- the need for carers,
- resilience and positive attitude.
‘Life with Endometriosis’ is raising awareness by making endometriosis visible
Life with Endometriosis is a simple 3 stage project:
1. Tell me your story. It is totally up to you what parts of your life you tell me about - by email or phone.
2. Make photos. I think about how to translate into photos and email or phone to discuss suggestions. We plan photo sessions and have fun taking photos. You may like to make art too.
3. Display photos. I prepare the photos for display. They can be used in talks about endometriosis, in art exhibitions and in an art photo book.
I’ll continue to listening to women’s stories and experiences with endometriosis until May 2016.
Like and Follow on Facebook.com/lifewithendometriosis
Contact me if you would like your story to help raise awareness: